A Day in the Life of Jacob

Here is a day in the life of Jacob, thanks to a camera.  Thankfully it was a great day, regarding his irritability!  It makes such a difference!!  Not everything is captured by pictures, but most things are.

 8:06 - peacefully asleep

 9:51 - still asleep

 10:54 - wow - still asleep!

 11:00 - time for meds

 11:03 - Jacob's tube extension needed to be replaced.  It must have been leaking in the night, because the nurse left the old one on the counter.

 11:03 - ready to put the extension on

 11:04 - extension on and water flushed through

 11:04 - we're ready for meds and feeds

11:06 - meds given

 11:06 - finally awake!

11:24 - bath time

 11:33 - time to dry off

 11:35 - weight time (still no gain!)

 11:42 - relaxation - he loves the bean bag chair!

 11:48 - feed made and ready to go

 11:49 feed being administered

 11:50 -feeding pump running at 44ml/hr (18 hours of the day)

 1:18 - repositioned in the vibrator chair - another favorite

 1:54 - Jacob's learned to grind his teeth :(  if we put the soother in, it usually helps him to stop

 2:04 - Caleb to the rescue

 2:41 - time for therapy in the 'little room'

 2:53 - working with lights, not much success lately

 3:04 - not happy

 3:06 - time for more meds

 3:09 - asleep (due to the sedation drug) - within 3 minutes

 3:16 - after every batch of meds or at the end of a feed, we flush his tube with water

 3:20 - feeding bag cleaned

 3:39 - time to clean syringes

 3:44 - his med chart - the only way I can keep things straight

 3:47 - time for more meds

 3:51 - Caleb loves to help!  The amazing thing is, we didn't have to tell him how fast to administer the meds.  It shows us how much he watches!

 3:56 still asleep

 5:12 - one med and a water flush

 6:00 - feeding time (he'll be fed from now till 7:00am) only with small breaks every 4 hours to clean the bag and refill

 7:07 - awake from his nap

 7:47 - not happy again

 9:00 - more meds - so so many every day :(

 9:05 - working with music therapy with his feet - every time he hits the music toy, it plays a song

 9:07 - making his night feeds

 9:10 - folding his laundry

 9:15 - he's responding well with the toy

 9:27 - diaper changing time and play time!

 9:33 - peaceful again

 9:35 - mommy and son time - precious beyond words!!

 9:39 - chest physio time - another thing that Jacob loves, which we have much to be thankful for!!

 10:47 - Daddy flushing his tube and spending time relaxing with his little man

 10:56 - feed bag being cleaned with hot soapy water

 10:57 - feed bag being rinsed with hot water

 10:59 - another feed ready to go

 11:00 - Jacob falls asleep as the nurse walks in the door. 

11:32 - a report is given to the nurse and I leave a boy peacefully asleep for the night (or at least for the time being.)