Tuesday, 26 February 2013

Battling Yet Again

      How hopeful humans can be!  I was hopeful after Jacob's last pneumonia, we'd be free from sickness for a while.  My hopes are dashed.  His lungs are full.  Again.   This evening he started bringing up coloured phlegm (not a good sign.)
      We're noticing all the regular symptoms; increased breathing, decreased oxygen saturation, higher heart rate, intermittent fever, secretions galore and super fussy.  His poor little brain and body.  It must be chaos inside his body.  Oh, but if he has peace in his soul, then ALL is well.  That's a daily prayer.  

      Jacob's nicely sporting his nasal prongs again.  He's sure not in agreement when we put them on, but eventually he gets used to it.  
Fighting hard.  Every breath is once again a struggle.  We need divine wisdom in how to use the medications we have in the house for such circumstances.  The meds which have been added recently is a whole new world for me, and one I'm far from confident with.  

Sleeping Beauty :)  He can look (and sound) so peaceful when asleep.  
Today I was privileged to be able to sit down with our case manager.  It was great to be able to talk with her, considering she was away for a couple weeks - a couple weeks where I truly missed her.  The Lord has blessed Paul and I far beyond what we deserve with all the excellent support we receive, regarding all aspects of Jacob's care.  I'll leave those details for another day :) 


  1. Thinking of you and your family Joanne. I will pray that God gives you strength again. Thanks for sharing. becca

  2. My daughter has been diagnosed with pontocerebellar hypoplasia and at times has difficulties breathing-does anybody have a suggestion to ease breathing please?

    George, Sydney