While driving to the hospital I was thinking about respite and what it means to us as a family. Here are some concluding thoughts:
- it allows Paul and I much more time with our other kids, which is something that they don't take for granted
- I can help the children more with their chores
- it gives us much more privacy in the home for the whole family
- I don't have to stay up to 11:00pm :) to give a report to the nurses
- it allows me to work outside
- it gives me the flexibility to bake and cook with much more ease, not fearing when I have to leave it immediately to tend with Jacob
- it gives the flexibility to catch up on many over due appointments (dentist, doctor etc)
- it allows us to visit (and have company here) much more easily and even have a Thanksgiving dinner without one of us having to stay home because a niece or nephew has a common cold
- it reinforces how much I (we)love Jacob!! When he is gone, the stress is drastically reduced, yet many times it's just eerie quiet when he's gone
- we can go about in the house and do our normal chores without the fear of waking up Jacob
- I have to set my alarm clock for the school mornings, as the nurses are not my alarm clock
- we can go to church as a family :)
- I often wonder how Jacob is doing at respite - when I hear that he is irritable, I just want to pick him up and bring him home
Here are some pictures from our last hospital stay. Looking at these, I'm beyond thankful to be home!
|Danielle, our fabulous enteral feeding nurse practitioner!|
I'm afraid she's had to deal with our worst moments with Jacob.
We greatly value her advice and patience!
|Jacob having an alert and content time|
|One of the nurses doing chest physio. He LOVES chest physio! |
It produced amazing results regarding his lung issues.